Free the Seats!!
I don’t fit in a lot of public seating. Tiny theater seats, those dumb IKEA seats that bruise my hips, and perhaps the worst of all – airline torture chambers. They are painful and embarrassing. Seat dimensions and alternate options should be easily found on every single website and social media account for any place…
Proof
Full body photos. They just don’t happen in my world. I’m the picture taker in my life and I don’t even have a full length mirror so there is a very high likelihood that they won’t happen. They happened. Every year for Mother’s Day I get myself a photoshoot with my kids. We use the…
Stupid Chairs
Here’s a new feature I’m calling “Stupid Chairs I Survived”. Mainly medical offices but in future installments you will suffer with me in restaurants, salons, theaters & the dreaded modes of travel. I have instigated a 10 😖 pain scale. Where are the worst chairs you have survived? #lipedema #lipedemalegs #stupidchairs
Yes, I am!
I was the Guest Teacher for a Kindergarten class today. The innocent little dears were such filterless honest creatures!! “Why are you so big?” “You are too tall!” “You look like Santa Clause!” (That was a big reach, Friend) and my favorite, “You are fat!” To which I replied, “Yes, yes I am! And there…
Mastodon!
I’ve never been a huge Twitter poster but I was a huge Twitter lurker. I followed lots of people that really added to my life. Since the sale of Twitter it doesn’t feel like a place I want to spend my time any longer. I’ve joined Mastodon and I really like it so far. Next…
Pep Talk
Texted this to my remarkable son tonight after a particularly hard day. I needed to hear it and maybe you do, too. 📷: @PeteSouza #hardthingsarehard Hard things are hard, my love. You getting thrown to the lions in that game with a moment’s notice is what is known as a HARD THING. You stood up,…
More shots
Arms looking good at the allergist!! Started Xolair shots today to try to help with the whole Chronic Hives triggered by UV rays. I had to sit in the waiting room for two hours to make sure I didn’t have any adverse reactions. Except for my sore butt from sitting, all went well, not even…
Lipedema Awareness Month…blahhhh
June is Lipedema Awareness Month. I’ve been putting a lot of pressure on myself to do special posts, create “content” and “influence”. A year ago I was recovering from my first surgery thinking I would be in great shape for June 2022. Well, I’m not. I’m not in great shape, I’m not motivated and I’m…
Allergic to the sun…
Took my legs to my son’s two lacrosse games Friday night. A beautiful night! Sunny and perfect. Ended up in urgent care Saturday after hives on my arms and chest that had started a few days before became so bad I was really worried. The hives have happened off and on since last summer. Turns…
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Lipedema Revolution 